Shanon Lyles

About My Campaign

I was told a while ago if you want people to donate to your cause someone has to be at deaths door or actually die before a heart string is tugged. Could this be true? Do we really need to wait for the worst case scenario? I for one can’t wait. I don’t want to wait for the day I am in a funeral home picking out caskets for my grown baby boy, knowing that if I only had the money, if I only was rich I could have saved his life.  

My son was diagnosed with a rare disease called RRP (Recurrent Respiratory Papillomatosis) five years ago and since then has endured over 41 surgeries, chemo, and a laundry list of other trial medications. The pain that comes with each surgery is intense and unimaginable.  For most people that have surgery they know this will be it, whatever the ailment or problem it will be taken care of and no more surgery. My son endures these surgeries every other month knowing he will be back soon for more, and again for more and again and again. Well, I think you get the picture. In all these years he has been a rock, a funny man taking it all in stride. Yet recently things have gone from bad to worse. You see in less than 1% of RRP victims the disease moves into the lungs. This is considered a fatal diagnosis because once it reaches the lungs for some reason it turns into cancer, or it just begins to slowly smother the patient. Recently the doctors found two large masses in his lungs that look to be cancer, so as I write this my son is in the OR having his lungs operated on. The staff at Stanford openly says there is only so much they can do for him here, they have never had a patient like Kody. We have found a doctor in Boston that specializes in his disease that uses a new drug shown to have significant results in slowing or stopping these growths. The treatment is brutal, it is costly, and it is in Boston.

 This is where you come in. You have the opportunity to save him, to give a young man his life back. A young man that has been fighting for his life since he was a boy that lost out on his teen years and now struggles to have a normal life outside of surgeries, treatments, and bad news. Kody is more than just a boy you watch on a video, more than a picture on a computer screen, he is my son, the absolute love of my life. He is a brother, a nephew, a grandson, a friend, a boyfriend, a true man of God and he is worthy of a chance at life. 

Please help Kody have a new life, a new chance at life, please be a part of his journey and help get him to Boston. I know that $100,000 is huge but what I also know is we serve a mighty God full of miracles. I mean come on, if he can turn water into wine then he certainly can take a bank account with cobwebs and fill it up with Bread (the almighty dollar). If you can help us with a donation then I thank you so much from the absolute depths of my soul. If you can’t help financially then would you please HELP and share this.

 With love from a Mommy that will never ever give up HOPE for my son. Shellie Nichol 

Hopesnotacrime.org